Sunflower Fund

Sunflower Fund
Bandana Day

Sunday 22 July 2012

What your money does for children with genetic disorders?

So, I went to the official site for Jeans for Genes and I found this:



  • £10 will pay for 60 minutes of specialist telephone advice for parents caring for a child with severe neurological genetic conditions.  
  • £50 will pay for a mother to attend a support day, giving her the help she needs to care for an extremely rare and profoundly disabling genetic condition.
  • £100 will help fund an educational booklet, helping teachers to maximise opportunities available to children with inherited learning disabilities.
  • £150 will pay for one child carer to enjoy a summer camp, enabling them to meet others in a similar situation, share experiences, reduce feelings of isolation and giving them some much needed fun
  • £250 will help fund a website where children affected with sex development disorders can obtain information and support, without the need to disclose their identity
  • £500 will pay for 5 families, affected by profound disabilities, to enjoy an adaptive skiing session, where they can have fun, build confidence and friendships with others in similar situations.  
  • £1,000 will help fund a film for teenagers with a life limiting condition, helping them to come to terms with, and encouraging them to begin to take responsibility for, their condition.
  • £2,000 will help fund a sensory toy warehouse for children with a rare premature aging disorder, enhancing their senses and providing parents with a way to fun and pleasurable way to engage with their child who might otherwise have limited ways of interacting.
Right now, we as a school are just above the £500 mark... and I think we can go past the £1000 mark at least this year, but that will all depend on how the school's community responds....

Just think of the happiness those families will be feeling due to our contribution....

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Jeans for Genes